For Eli Thompson, the misfortune of being born without a nose was not going to beat him or his family. The odds of even having this condition are highly astronomical as only 47 other cases have ever been reported.
See videos at the end
Doctors told the mother, Brandi, that her baby was unfortunately the one in 197 million born who acquired a very rare disease. The sweet angel was born with no nasal passages or sinus cavities which obviously shocked her family but they were still thankful she was alive.
Eli’s condition, known as congenital arhinia, is extremely rare based on the findings of National Institutes of Health.
Like the doctors, Brandi wasn’t sure if baby Eli would survive or not. She wrote on her page, “That entire night, I was scared, alone, and confused. I called every 15 minutes to ask if my child was still alive.”
Based on the doctor’s analysis, the main problem centered around the act of eating. Meaning, that Eli wouldn’t be able to breathe and eat at the same time. For him to survive, he underwent a surgery known as tracheostomy, where a hole is made in the windpipe to allow him to breathe. It was a first step, but everyone knew unfortunately, would not be the last.
Brandi shared that baby Eli spent more than a week in the neonatal intensive-care unit and had to return every now and then because of his condition. She also shared that he had to undergo multiple reconstructive surgeries annually till he reaches puberty.